It was a lovely August day, and the house was open. Through the kitchen window, I could hear the voices outside where Dad was talking to a neighbor. Dad was 83, but he sounded 20, self-assured and energetic in his conversation. No fumbling for words or any other signs that he was making it up as he went along.
Then he came in and asked me where the bathroom was. He’d lived in that house for over 50 years.
The Black Thing filled the doorway on his way to the bathroom; Dad walked through it. It was always in a doorway, a wanton living sentient void, to remind me there was no way out. There was no food that didn’t taste like the blackness, no sunshine that wasn’t tainted by it, no voice that wasn’t hollowed by it. Its very silence was discordant.
I made dinner earlier to get food in dad before the Black Thing took him. It curled Dad over his dinner plate, forced him to strip his bed and stuff the pillows in his desk, forced him to dig tablecloths out of the old buffet and arrange them, bedlike, on the dining room floor, forced him to walk and walk and walk and walk. Night after night after night.
It covered Dad’s eyes with nightmares so Dad wouldn’t know where he was, wouldn’t know me, wouldn’t know himself. Walking, walking, driven by the Black Thing. Dad’s face wore the dying. Walking, walking, frail, frightened, angry.
When the anguished nights gave way to exhausted day, the Black Thing resumed its vigil in doorways. Like a bat to a cave. Goading me. Dad knew nothing of the nights, of the faceless thing that made even the humanity of tears impossible.
Submitted to Dan Antion’s
Thursday Doors Writing Challenge
with thanks to him for hosting,
and with thanks to Teagan R. Geneviene for the photo.
May 21, 2023 at 12:48 pm
Maureen, I am awestruck by your incredibly accurate description of senility/dementia. There’s a lot that can be said about this horrible “disease”, but you said it perfectly. Wow!
Teagan’s door photo couldn’t be more perfect. It definitely struck a chord with you. At my age, it’s certainly a path I wonder and worry if I will be taking.
Ginger
May 21, 2023 at 1:02 pm
Thanks, Ginger. Dad had vascular dementia, which plays out differently from Alzheimer’s, but any form of dementia is terrifying. Every time I read that researchers might have a clue about treatment/cure, I hold my breath. Yes, many of us wonder and worry.
May 21, 2023 at 1:02 pm
This is such a powerful (and sadly accurate) description of a fate that waits for so many, Maureen. Thank you so much for adding this to our collection. It’s one everybody should read. I saw this first hand as a child, taking care of my grandmother. I will never forget.
May 21, 2023 at 1:05 pm
That’s right: you will never forget. Ironic, isn’t it, that the patients never remember and the caregivers never forget. Thank you, Dan.
May 21, 2023 at 3:53 pm
It is ironic. I did learn a lot from her.
May 21, 2023 at 2:53 pm
This reminds me of your wonderful writing about those terrible years. The book that’s, perhaps, still waiting.
May 21, 2023 at 2:56 pm
Thanks, Shirah. Yes, still waiting. I haven’t figured out how to proceed, but I haven’t given up. This image really brought everything back.
May 21, 2023 at 6:17 pm
Maureen–I am awestruck. This is horrible and heartbreaking and so very true. They talk about testing to detect early onset dementia. I hope so. It is an awful disease.
May 21, 2023 at 6:37 pm
Awful indeed. I hope that if they detect early onset they can also do something about it. Otherwise, what’s the point? Just to terrify people? We desperately need help dealing with this.
May 21, 2023 at 8:18 pm
Oh, Maureen, that was truly moving. I had goosebumps. Wow… Thank you for using my image collage and for the shout-out. Hugs.
May 21, 2023 at 9:33 pm
As I said to Dan, your image wouldn’t leave me alone. It really speaks to the world of caregiving and dementia.
May 22, 2023 at 2:40 am
Powerfully written. I am so sorry there’s so much truth here and that you and your dad had to go through this. It’s a terrifying disease, so common and yet not commonly spoken about. ‘The patients never remember and the caregivers never forget’ is powerful too.
May 22, 2023 at 10:42 am
Thank you, Susan. It was a long time ago now, but it feels like today. Dementia is indeed a terrifying disease, and I do understand why people avoid talking about it, but there it is. I tried to avoid writing this blog post even though Teagan’s image insisted. The image won out, obviously.
May 22, 2023 at 2:17 pm
It’s very important to raise awareness – you’d think enough people were already aware, wouldn’t you, but the trouble is reaching people who don’t have experience but have some power to help.
May 22, 2023 at 2:49 pm
Indeed, you’d think there would be more awareness. We’ve conquered other diseases, and it sure seems to me it’s taking an awfully long time to come to grips with this one.
May 22, 2023 at 10:46 am
Powerful words, Maureen, that we can all relate to either through family or friends. I was talking to a gardening friend yesterday about this very scary topic.
May 22, 2023 at 11:31 am
It needs to be talked about, but I understand why people recoil from the subject; it is profoundly — and rightly — disturbing. It’s so good your gardening friend had you to talk to!
May 27, 2023 at 11:24 pm
This is so moving. All of us who have seen someone we love disintegrate with Alzheimer’s can recognize that black thing. Teagan’s image is perfect. (K)
May 28, 2023 at 10:29 am
Thank you! Indeed that image is perfect — so threatening. Dementia is a horror.